Here's my new favorite site, an online forum for people whose lives have been touched by pediatric liver disease or transplant. Thanks to Aunt Amanda at Imagine Bright Futures. I can't wait to meet Billy Rubin.
I love your blog! I am thrilled to find it!! I am a lung tx recipient twice over, one in 2000 and one in 2004. I have a blog about the patient experience. I thought you might like to see this post in particular: http://sickgirlspeaks.blogspot.com/2007/04/letter-to-my-beloved-transplant.html It's a letter I wrote to my coordinator. Thanks for all you do!
Tiffany, Glad to hear your double lung tx worked out ok. Lungs are difficult to get to transplant and take a lot of work. More rare than heart tx's even.
I should know, my wife always works to try to get the lungs "to go" but seldom succeeds. Just this week though she got one lung "to go" after much hard work. It was a big accomplishment and she was quite proud.
She also works hard writing this blog. Good Job, TJ
5 comments:
I love your blog! I am thrilled to find it!!
I am a lung tx recipient twice over, one in 2000 and one in 2004. I have a blog about the patient experience. I thought you might like to see this post in particular:
http://sickgirlspeaks.blogspot.com/2007/04/letter-to-my-beloved-transplant.html
It's a letter I wrote to my coordinator. Thanks for all you do!
PS. I added you to my blogroll and would love it if you would add me to yours!! :)
Good find. I like the format. Message boards can sometimes look so bleak, but this one's warm, inviting and colorful. Nice job Mika!
Tiffany,
Glad to hear your double lung tx worked out ok. Lungs are difficult to get to transplant and take a lot of work. More rare than heart tx's even.
I should know, my wife always works to try to get the lungs "to go" but seldom succeeds. Just this week though she got one lung "to go" after much hard work. It was a big accomplishment and she was quite proud.
She also works hard writing this blog. Good Job, TJ
as always, your blog is a wonderful read.
i was wondering if you had read anything about one of the virginia tech victims being a donor?
it was mentioned on someone else's transplant blog, but i haven't been able to find a news source.
best to you!
Post a Comment